Brian’s Story

As a father with low vision, I’ve learned that parenting can look a little different for me than it does for sighted dads. I have two sons — one is 10, the other is 5. Even though I couldn’t drive them to school, and struggled to move with them through crowded places, my wife Emily and I felt like we had parenting figured out by this point. But as my kids grew up and my eyesight gradually worsened, I grew concerned about how I’d keep up. Most days I felt like I had everything under control. But more and more often, I wasn’t so sure.

That all changed a year ago when I found out about an online support group for parents with vision loss, offered by Lighthouse Guild. I was hesitant to join, uncertain if it would really help, but I’m proud to say I was wrong and so grateful I took that first step.

At first, I wasn’t sure what to expect. But from the very first conversation with Daria, the group facilitator, and the other parents, I felt something shift. I started hearing stories that sounded a lot like mine. I listened to how other parents adapted, how they problem-solved, how they navigated challenges I hadn’t even put into words. I realized I wasn’t alone. And more importantly, I realized I didn’t have to figure everything out by myself.

In the past year speaking with other members I’ve learned so many practical tools that have transformed my experience as a parent. One conversation led me to discover audio description headsets at movie theaters. Before, I used to sit beside my son and just listen to him laugh, not really knowing what was happening on screen. Now, we laugh at the same moments, react to the same scenes. That shared experience means more than I can explain.

The group has also helped me realize my strengths as a father with vision loss. I coached my son’s soccer team recently, something I never thought I could do, and realized that my patience, awareness, and ability to listen gave me an edge other coaches didn’t have. It’s made me see fatherhood in a whole new way.

One of the most beautiful things has been watching my kids grow into this with me. My oldest has become an amazing guide in new or crowded places, like at the movies. He’s learning empathy and leadership because of how we move through the world together.

Today, I feel more connected: to my children, to myself, and to a community of parents who truly understand. I’m proud of the father I am and grateful for the ways I continue to grow. If you or someone you love is facing the challenges of vision loss while parenting, let me be the first to tell you—you are not alone. There’s a community that gets it. Wherever you are in the world, Lighthouse Guild is here for you.